Resources – National

These pages include resources that have been mentioned as part of the ECHO sessions.  As we grow from a Queensland based service to a nationwide one, we will be adding more resources as we continue to expand.  Please email palliativecareecho@uq.edu.au if you think there is a resource that would be helpful in your state or territory.

Palliative Care Australia: Go to site

Supporting children and young people when someone dies: Go to site

Questions children may ask: Go to site

UCSF ePrognosis – Prognostic Calculator: Go to site

Breathlessness – Video and audio to help manage breathlessness: Go to site

Learning Through Loss: Go to site

LGBTIQ+ Inclusive Palliative Care eLearning

Delivered across 4 x 1 to 1.5 hour modules:
Module 1: Introduction to LGBTIQ+ communities
Module 2: Barriers to providing and receiving palliative care
Module 3: Enablers for LGBTIQ+ people in palliative care
Module 4: Having end-of-life planning conversations

Access the modules here

Also available:
Recording of recent webinar hosted by Palliative Care Australia to shed light on providing patient-centered and culturally sensitive palliative care for the LGBTIQ+ communities, and
Interview with Dr Ashwin Kaniah on what doctors working in palliative care need to consider with LGBTIQ+ patients.

Gwandalan Dillybag – an applied and interactive toolkit: Go to site

End of Life Law in Australia – a website to help explain end of life law, which has a designated VAD section but covers all end of life law issues across Australia: Go to site

End of Life Law for Clinicians – a training program for clinicians about end of life law, funded by the Commonwealth Government. It has a designated VAD module (Module 12) but covers all end of life law issues across Australia: Go to site

Optimal Regulation of Voluntary Assisted Dying: a 4 year research project across Victoria, WA, and Queensland (as well as Canada and Belgium). The website has a link to all the publications, Research Briefings (short summaries of research) and Policy Work under the ‘Impact’ tab as well as a consumer facing brochure under ‘Contacts’ tab: Go to site

Gather My Crew: Go to site

Healthy End of Life Program (HELP): Go to site

My Grief App: Go to site

Website for Advance Care Planning Australia: Go to site

ACP “how to” quick guide for health professionals: View guide

ACP aged care implementation guide: View guide

What Matters Most – Discussion Starter Go to site

Aboriginal and Torres Strait Islander Discussion Starter – Working Out What’s Right For You Go to site

Voicing My CHOICES – A Planning Guide for Adolescents & Young Adults View guide

Australian Indigenous people and treatment decision-making at end-of-life

Neller, P., Feeney, R., Willmott, L., Then, S.-N., Munro, E., Cain, K., Yates, P., & White, B. P. (2024). Australian Indigenous people and treatment decision-making at end-of-life. Alternative Law Journal0(0). https://doi.org/10.1177/1037969X241255172

caring @ home: Go to site