A National Palliative Care Project funded by the Australian Government Department of Health and Aged Care
Resources – National
Palliative Care Australia: Go to site
Prompts for End-of-Life Planning (PELP) Framework: View PDF
CareSearch: “Palliative care evidence and tools for health professionals and information about death and dying for the whole community”: Go to site
National Core Community Palliative Care Medicines List: View guide
Supporting children and young people when someone dies: Go to site
Questions children may ask: Go to site
UCSF ePrognosis – Prognostic Calculator: Go to site
Breathlessness – Video and audio to help manage breathlessness: Go to site
Learning Through Loss: Go to site
LGBTIQ+ Inclusive Palliative Care eLearning
Delivered across 4 x 1 to 1.5 hour modules:
Module 1: Introduction to LGBTIQ+ communities
Module 2: Barriers to providing and receiving palliative care
Module 3: Enablers for LGBTIQ+ people in palliative care
Module 4: Having end-of-life planning conversations
Also available:
Recording of recent webinar hosted by Palliative Care Australia to shed light on providing patient-centered and culturally sensitive palliative care for the LGBTIQ+ communities, and
Interview with Dr Ashwin Kaniah on what doctors working in palliative care need to consider with LGBTIQ+ patients.
IPEPA Resources (Padlet): Go to site
ACP resources for Aboriginal and Torres Strait Islander people (Qld Government): Go to site
Gwandalan Dillybag – an applied and interactive toolkit: Go to site
caring @ home – Palliative Care Clinic Box – Symptom management support for Aboriginal and Torres Strait Islander families: Go to site
Quality of Care Collaborative Australia (QuoCCA) – “paediatric palliative care education to health professionals in urban, rural, regional and remote areas who may care for children and young people with palliative and end-of-life care needs”: Go to site
End of Life Law in Australia – a website to help explain end of life law, which has a designated VAD section but covers all end of life law issues across Australia:
Go to site
View brochure
End of Life Law for Clinicians – a training program for clinicians about end of life law, funded by the Commonwealth Government. It has a designated VAD module but covers all end of life law issues across Australia:
Go to site
View curriculum
End of Life Directions for Aged Care (ELDAC) Resources
End of Life Tookit: View brochure
VAD Resources for Residential Aged Care: View brochure
Research
Optimal Regulation of Voluntary Assisted Dying: a 4 year research project across Victoria, WA, and Queensland (as well as Canada and Belgium). The website has a link to all the publications, Research Briefings (short summaries of research) and Policy Work under the ‘Impact’ tab as well as a consumer facing brochure under ‘Contacts’ tab: Go to site
Australian Indigenous people and treatment decision-making at end-of-life
View journal article
Neller, Penny and Feeney, Rachel and Willmott, Lindy and Then, Shih-Ning and Munro, Eliza and Cain, Katie and Yates, Patsy and White, Ben, Australian Indigenous People and Treatment Decision-Making at End-of-Life ( 2024). Alternative Law Journal, Available at SSRN: https://ssrn.com/abstract=4825828
Evaluation of the Pharmaceutical Benefits Scheme subsidised take home naloxone pilot (Australian Government Department of Health and Aged Care): Go to site
Take Home Naloxone program (Australian Government Department of Health and Aged Care): Go to site
Take Home Naloxone Training (Australasian College of Pharmacy): Go to site
Take Home Naloxone Program (Pharmacy Programs Administrator): Go to site
Website for Advance Care Planning Australia: Go to site
ACP “how to” quick guide for health professionals: View guide
ACP aged care implementation guide: View guide
What Matters Most – Discussion Starter Go to site
Aboriginal and Torres Strait Islander Discussion Starter – Working Out What’s Right For You Go to site
Voicing My CHOICES – A Planning Guide for Adolescents & Young Adults View guide
Australian Indigenous people and treatment decision-making at end-of-life
Neller, P., Feeney, R., Willmott, L., Then, S.-N., Munro, E., Cain, K., Yates, P., & White, B. P. (2024). Australian Indigenous people and treatment decision-making at end-of-life. Alternative Law Journal, 0(0). https://doi.org/10.1177/1037969X241255172
CarerHelp: Go to site
caring @ home: Go to site
These pages include resources that have been mentioned as part of the ECHO sessions. As we grow from a Queensland based service to a nationwide one, we will be adding more resources as we continue to expand. Please email palliativecareecho@uq.edu.au if you think there is a resource that would be helpful in your state or territory.