A National Palliative Care Project funded by the Australian Government Department of Health and Aged Care
Resources – National
- Overview
- Aged Care Reform
- Guides & Tools
- Education & Training
- Aboriginal and Torres Strait Islander Care
- Compassionate Communities
- Paediatrics
- End of Life Law
- Voluntary Assisted Dying
- Naloxone
- Mobile Apps
- Advance Care Planning
- Research Articles
- Misc
- Breathing & Respiratory
- Grief & Bereavement
- Priority Populations
Palliative Care Australia: Go to site
Prompts for End-of-Life Planning (PELP) Framework: View PDF
CareSearch: “Palliative care evidence and tools for health professionals and information about death and dying for the whole community”: Go to site
Caring for the Carer: Go to site
Department of Health and Aged Care resources
Support at Home program: Go to site
Single Assessment System for aged care: Go to site
Features of the new Support at Home program: Go to site
Webinar – Support at Home program update
- Webinar information
- View the webinar here:
Royal Commission
Aged Care Quality and Safety: Go to site
Palliative Care Australia
News article – Palliative care and aged care deserve more attention during election campaign: Go to site
Guides
National Core Community Palliative Care Medicines List: View guide
Supporting children and young people when someone dies: Go to site
Questions children may ask: Go to site
Tools
UCSF ePrognosis – Prognostic Calculator: Go to site
Breathlessness – Video and audio to help manage breathlessness: Go to site
End of Life Toolkit: View brochure
VAD Resources for Residential Aged Care: View brochure
Learning Through Loss: Go to site
Good grief, this hurts!
Good grief, this hurts! 2025 – Growing Up & Grieving: Go to registration
Good grief, this hurts! is a free, annual educational event aimed at building community capacity and practical awareness about grief, loss, death and bereavement as experienced by children and young people. The event is an opportunity to enhance knowledge and skills in supporting a child or young person who is grieving.
LGBTIQ+ Inclusive Palliative Care eLearning
Delivered across 4 x 1 to 1.5 hour modules:
- Module 1: Introduction to LGBTIQ+ communities
- Module 2: Barriers to providing and receiving palliative care
- Module 3: Enablers for LGBTIQ+ people in palliative care
- Module 4: Having end-of-life planning conversations
Also available:
- Webinar hosted by Palliative Care Australia to shed light on providing patient-centered and culturally sensitive palliative care for the LGBTIQ+ communities: View recording
- Interview with Dr Ashwin Kaniah on what doctors working in palliative care need to consider with LGBTIQ+ patient: Read interview
End of Life Law for Clinicians
- Free online training course for aged care (flyer): View flyer
- Aged care online training curriculum: View curriculum
IPEPA Resources (Padlet): Go to site
Australian Indigenous HealthInfoNet – Palliative Care and End-of-Life Care: Go to site
ACP resources for Aboriginal and Torres Strait Islander people (Qld Government): Go to site
Gwandalan Dillybag – an applied and interactive toolkit: Go to site
caring @ home – Palliative Care Clinic Box – Symptom management support for Aboriginal and Torres Strait Islander families: Go to site
Palliative Care Australia – Aboriginal and Torres Strait Islander Discussion Starter – Working Out What’s Right For You: Go to site
Clinical Yarning: Go to site
National Aboriginal & Torres Strait Islander Palliative Care Association Inc. – Comfort Care: Go to site
Research
Australian Indigenous people and treatment decision-making at end-of-life
Neller, P., Feeney, R., Willmott, L., Then, S.-N., Munro, E., Cain, K., Yates, P., & White, B. P. (2024). Australian Indigenous people and treatment decision-making at end-of-life. Alternative Law Journal, 0(0). https://doi.org/10.1177/1037969X241255172
Compassionate Communities Australia booket – View booklet
Compassionate Communites Australia – Visit the website
World Compassionate Communities Day – 1 November – Visit the website
Quality of Care Collaborative Australia (QuoCCA) – “paediatric palliative care education to health professionals in urban, rural, regional and remote areas who may care for children and young people with palliative and end-of-life care needs”: Go to site
End of Life Law in Australia – a website to help explain end of life law, which has a designated VAD section but covers all end of life law issues across Australia:
Go to site
View brochure
End of Life Law for Clinicians – a training program for clinicians about end of life law, funded by the Commonwealth Government. It has a designated VAD module but covers all end of life law issues across Australia:
Go to site
View curriculum
- Free online training course for aged care (flyer): View flyer
- Aged care online training curriculum: View curriculum
- Newsletter articles: View articles
Research
Australian Indigenous people and treatment decision-making at end-of-life
View journal article
Neller, Penny and Feeney, Rachel and Willmott, Lindy and Then, Shih-Ning and Munro, Eliza and Cain, Katie and Yates, Patsy and White, Ben, Australian Indigenous People and Treatment Decision-Making at End-of-Life ( 2024). Alternative Law Journal, Available at SSRN: https://ssrn.com/abstract=4825828
End of Life Law in Australia – a website to help explain end of life law, which has a designated VAD section but covers all end of life law issues across Australia:
Go to site
View brochure
End of Life Law for Clinicians – a training program for clinicians about end of life law, funded by the Commonwealth Government. It has a designated VAD module but covers all end of life law issues across Australia:
Go to site
View curriculum
VAD Resources for Residential Aged Care: View brochure
Research
Optimal Regulation of Voluntary Assisted Dying: a 4 year research project across Victoria, WA, and Queensland (as well as Canada and Belgium). The website has a link to all the publications, Research Briefings (short summaries of research) and Policy Work under the ‘Impact’ tab as well as a consumer facing brochure under ‘Contacts’ tab: Go to site
Evaluation of the Pharmaceutical Benefits Scheme subsidised take home naloxone pilot (Australian Government Department of Health and Aged Care): Go to site
Take Home Naloxone program (Australian Government Department of Health and Aged Care): Go to site
Take Home Naloxone Training (Australasian College of Pharmacy): Go to site
Take Home Naloxone Program (Pharmacy Programs Administrator): Go to site
Gather My Crew: Go to site
Healthy End of Life Program (HELP): Go to site
My Grief App: Go to site
The HELP App: Go to site
Website for Advance Care Planning Australia: Go to site
ACPA education: Online courses | Advance Care Planning
State by state information: Create your plan | Advance Care Planning
ACP “how to” quick guide for health professionals: View guide
ACP aged care implementation guide: View guide
What Matters Most – Discussion Starter Go to site
Aboriginal and Torres Strait Islander Discussion Starter – Working Out What’s Right For You Go to site
Voicing My CHOICES – A Planning Guide for Adolescents & Young Adults View guide
AJGP (Australian Journal of General Practice) – August 2025 – Palliative Care special edition
Australian Indigenous people and treatment decision-making at end-of-life
Neller, P., Feeney, R., Willmott, L., Then, S.-N., Munro, E., Cain, K., Yates, P., & White, B. P. (2024). Australian Indigenous people and treatment decision-making at end-of-life. Alternative Law Journal, 0(0). https://doi.org/10.1177/1037969X241255172
CarerHelp: Go to site
CarerHelp: Support Workers – Tips for supporting someone who is seriously ill and may be dying: View document
caring @ home: Go to site
Breathing, Thinking, Functioning: Go to site
Inspire Breathing Better: Go to site
Information about high flow nasal cannula oxygen therapy: Go to site
Research
Brené Brown on Empathy vs Sympathy (YouTube): View Video
Dementia Support Australia: Go to site
What is grief? – Book (for ages 4+): View PDF
Grief literacy poster for adolescents: View PDF
Navigating Through Grief and Loss – a resource for adolescents: View PDF
This is grief – Book (Pre-order): Go to site
Additional grief and loss resources: Go to site
Grief directory: Go to site
Beginnings and endings with lifetimes in between: Go to site
Grief and bereavement screening: View PDF
Bereavement resources for primary care: Go to site
Training Resources
Grief and Loss: Go to site
Learning through Loss: Go to site
Grief – Self-paced courses: Go to site
Support Services
Grief Line: Go to site
Living OLDER – Visibly and Engaged: Go to site
Trans Hub – a resource for trans people, our loved ones, allies and health providers: Go to site
Pride Training – LGBTQ+ awareness training for individuals and organisations: Go to site
NSW Government / eviQ Education – training modules developed by Acon’s Pride Training: Go to site
LGBTIQ+ Inclusive Palliative Care eLearning
Delivered across 4 x 1 to 1.5 hour modules:
Module 1: Introduction to LGBTIQ+ communities
Module 2: Barriers to providing and receiving palliative care
Module 3: Enablers for LGBTIQ+ people in palliative care
Module 4: Having end-of-life planning conversations
Also available:
Recording of recent webinar hosted by Palliative Care Australia to shed light on providing patient-centered and culturally sensitive palliative care for the LGBTIQ+ communities, and
Interview with Dr Ashwin Kaniah on what doctors working in palliative care need to consider with LGBTIQ+ patients.
These pages include resources that have been mentioned as part of the ECHO sessions. As we grow from a Queensland based service to a nationwide one, we will be adding more resources as we continue to expand. Please email palliativecareecho@uq.edu.au if you think there is a resource that would be helpful in your state or territory.